Critical Perspectives in Human Research

Essential questions:

How were the rights of these people(s) violated?
What parts of their identity were taken advantage of?
What social or economic issues played a role in each case?

Student activities:

In a group read and discuss one of the four case studies.
Answer guiding questions
Discuss each case as class.

Screen Shot 2022-05-29 at 9.45.18 AM.png

Screen Shot 2022-05-28 at 1.22.32 PM.png

The Tuskegee Syphilis Study (1932-1972)

b28d419d29_Tuskegee finding your roots 1200.jpeg

Screen Shot 2022-05-28 at 2.26.38 PM.png

The Havasupai Indians (1989-2003)

Screen Shot 2022-05-29 at 9.44.15 AM.png

Henrietta Lacks and HeLa Cells (1951-present)

Screen Shot 2022-05-29 at 9.44.55 AM.png

Willowbrook Study (1950’s- 1970’s)

Screen Shot 2022-05-28 at 2.29.44 PM.png

Screen Shot 2022-05-29 at 11.02.55 AM.png

Concept Map

After reviewing all of the cases we discussed the main concepts that should guide the design and execution of human research. We also defined a number of considerations that should be taken into account when recruiting, informing, and compensating humans for research. An interesting discussion regarding compensation ensued and we were left pondering these questions:

Once you give a sample of your tissue for research does your ownership end there? Is it still considered a part of you?

Are you entitled to profits from any potential inventions that used your tissue? If so, for how long?